Sam's Progress

It has been a long time. We have gotten results back from Sam's genetic test. Since we are unsure of what the diagnosis means, I would rather not write it out. But, I will say that they did find an abnormality but it is so new that they are unsure what symptoms it will cause. So we are determining how much more testing we would like our family to undergo or if this is enough. We are leaning towards the latter. As far as his growth, Sam went to the endocrinologist today and he has gained.....2 and a half pounds. Yea! He has grown 1 centimeter. Yep...1 centimeter, but we'll take it. The doctor assured us that this is good that he's gaining before growing. That way, he will not end up looking like he's been in some sort of war camp.
As far as surgery goes, Sam will be having a small procedure done on his stomach where his feeding tube once was. It has begun to leak every time he drinks anything. We will be meeting with the surgeon on Thursday to plan the surgery and will know the date then. The thought of having another surgery is kind of scary. Sam does not react well to anesthesia. The older he gets, I think it will be harder to have these surgeries because he is well aware of the fact that the doctor's office visits and hospitals are generally a scary thing.
He is doing a great job with his walking. He runs now and loves it! He loves to chase his brothers around the house and is pretty fast. We are so proud of him!