Wednesday, April 11, 2007

Where do we go from here?

Let me preface this by saying that Sam sees quite a number of specialists and we visit doctors' offices every week. Almost all of the doctors that we see have very warm and friendly atmospheres for their little patients. Yeah, this is just like saying, "No offense, but..." (I hate it when people say that!) You know that I'm about to say something that is not so positive. Well, yesterday Sam had his appointment with the endocrinologist. As you may recall, this is the office that reminds me of the Seinfield episode with the man who yells,"No soup for you!" All of the patients' parents seem to be afraid of the receptionists. The sign tells you to sign in and to be seated. As you sign in, it seems like there must be an unwritten rule that you cannot make eye contact with any of the receptionists. They will not look at you unless your name was called out. I truly felt bad for the parents who brought siblings along. They must have not seen that other sign. Well, our appointment was at 2:00 and it was 3:00, but I was scared to ask them if we were scheduled for the right time. Oh by the way, they literally have a bulletin board that tells you that they rank in the top whatever for their professional services. You know if they have to have a bulletin board to tell you how nice they are, that that is not a good sign(literally). Well, I eventually mustered up my courage to ask her if we were there at the right time and she said yes. So, by 3:15, we saw the doctor. Sam had lost another pound with no noticeable growth in height. He seemed to be pretty perplexed at what to do. He wanted to run another test on Sam, but did not feel that he could get an I.V. in Sam because his veins were too small. So, his plan was to wait until July to run the next test. This is also when we will be seeing a geneticist. So, to make a long story a little shorter, nothing was done and Sam is still not growing. He did tell me that some kids just don't grow,even with hormones. So, where do we go from here? We're not sure.....

Tuesday, April 10, 2007

Shoes

Sam is seeing the endocrinologist today. We will be measuring him and taking another blood sample to see if his growth hormone levels have changed. If they have not changed, we will begin the daily injections of growth hormones.=( One good thing is that Sam recently outgrew a pair of shoes. Big Deal? Yes!!!He has been wearing the same pair of shoes since he started to wear shoes at about 6 months of age. We just bought a new size for him. It's funny how these little steps make us excited where as with my other kids, we dread when they have to get new shoes. Eli and him wear the same size clothes, which makes sorting laundry extra fun.=) They are looking more and more like little twins. Everyone thinks that they are. HIs walking is continuing to improve. He loves to show off and take a few steps but is very stubborn when it comes to actually practicing. He likes for it to be on his own time. I don't know where he gets that from.(me?) AS far as his speech goes, he is still struggling with saying most of his consonants. We are working on some daily massaging and stretching in and around his mouth to improve the muscle tone.
Thank you all for your prayers and I will do better at keeping this blog and my other blog updated.

Sam-1 week

Sam-1 week

Sam @ 5 months

Sam @ 5 months

May 2006

May 2006
Night Before Sam's Surgery

July 2006

July 2006
Two months surgery