Tuesday, May 8, 2007

No I V

Well, the nurse could not get the IV in his veins. Sam's veins are so tiny and everyone seems to have such a hard time getting the IV in. The nurse was so nice and only tried when she thought there was a chance of getting it. Sam screamed and screamed and soaked the whole table with sweat. He is now pretty aware of what is about to happen now when he goes to the Doctor. So, we are going to wait until the Doctor is back in town so that he can try. This will be on the 21st.
Yesterday, when Sam and I got back from the Doctor, Sam had another "episode" of screaming for about an hour. It was a pain scream. His breathing became a little "off". I don't know how else to describe it. There was no stopping him either. His stomach was hard as a rock. His head was soaking wet from sweat and he got so pale. After the pain went away, he drank everything in sight. He even woke up last night twice so thirsty and drank a ton of juice. Most of the time I can convince myself that nothing else is wrong with Sam. But yesterday and days when this happens, I know that we are missing something. I just want him to quit having this kind of pain. I have no idea what it is, but I am so determined to get to the bottom of this. I'm going to call the Dr. today to see what we can do.

Saturday, May 5, 2007

Sam's Upcoming Test

Sam's doctor called us this week with a request to bring him in so that they could run another test. He will not be able to have any food or drink for 12 hours. This will be pretty hard for Sam. He always wants to eat and drink. He will be given an IV and some medication that will make him pretty nauseous. Then, they will give him some medication to make him sleep. Please pray that they get the IV in right away. He has extremely small veins which always makes it difficult. I'm going to bring our DVD player so that he can watch one of his Praise Baby DVD's. He loves them. This test will measure the amounts of growth hormone that he is producing. The doctor explained to us that the pituitary gland produces this in spurts throughout the day, so they will be checking it the whole time. Please pray that God will give us clarity on making decisions for Sam.
Sam is doing so great walking! He wants us to clap for him all of the time. When he walks, he puts his hands on his butt. He thinks that it is so funny. His physical therapist is working with him climbing on the swingset. Sam is getting the hang of it. He does such a great job with Sam as well as teaching us different techniques to work with him on. God has blessed us with 3 wonderful therapists to help Sam. They all love Sam and are all so nice. Sam especially loves all of the toys that they bring. They always seem to have the neatest little toys. They each have such a gift for working with children.
I'll keep everyone updated on the results of this test. Please pray that it will go well and as pain free as possible.

Sam-1 week

Sam-1 week

Sam @ 5 months

Sam @ 5 months

May 2006

May 2006
Night Before Sam's Surgery

July 2006

July 2006
Two months surgery